PD News

Parkinson’s Awareness Month!

April is almost here which means it’s time to start thinking about Parkinson’s Awareness Month! We have so many exciting events happening this year and we would love for you to be apart of them.

We will be doing our iconic Blue Ribbon Sale again this year and need more locations to participate! This event can be done at any number of places and is super easy to get involved with. Blue Ribbons can be “sold” for any amount and are then written on by the donor and hung for everyone to see. Along with Ribbon sales, Wear Blue Day is also a great way to get a school or business involved with a great cause. On April 28th we are encouraging everyone to wear as much blue as possible to promote PD Awareness.  If you know of any schools, businesses, or offices that would like to be involved in this great fundraiser, please contact us ASAP!

We will also be selling blue light bulbs this year, which are great for indoor and outdoor use! These can be purchased at our office and are $3 for one or 10 for $25Grab a FREE sign for your lawn at our office to really get in the spirit for Parkinson’s Awareness Month!

 This year we have an extensive list of locations that will be lit in blue during the month of April. The first week of April we have the entire Theater District in Buffalo being lit along with the Peace Bridge, The Electric Tower, and Niagara Falls. And for the entire month of April we have the Botanical Gardens being lit! Get together with friends and family during PD Awareness month to check out how great Buffalo looks lit in Blue!

Lastly, don’t forget to buy your tickets to “A Night of Hope for Parkinson’s” our annual Wine tasting event! This is one of our most popular events of the year and you won’t want to miss it. Click here to learn more.

Moving Day 2017!

face-paintingLast years Moving Day was a great success! We raised a total of $80,000!! This year we want to raise even more and get as many people as possible involved! We are currently looking for sponsors for this amazing event so if you would like to sponsor or know a business that would like to, let us know!

If anyone is interested in being apart of the Moving Day Planning Committee for next year, our next meeting will be March 22nd. Everyone is welcome to join us and help us make Moving Day the best event of the year! having-fun

“Moving” Moving Day Story

Carolyn Gloudemans was diagnosed with Parkinson’s a year ago and is very excited to share her story with everyone. Click here to read how Carolyn is making big accomplishments in her battle with Parkinson’s!

 

 

What’s Happening

Click Here for A Full Calendar of March’s Events!

Eat for Money!-

Join us for another Eat for Money hosted by Santora’s Pizza, Pub, and Grill! On April 24th eat in or take out food from Santora’s with a certificate from NPFWNY and 25% of your total bill will be a donation to NPFWNY! This event will take place ALL DAY on April 24th and you can come back more than once! Simply follow the instructions on the flier below and enjoy a great meal at Santora’s! Click here for flier.

A Night of Hope for Parkinson’s-

Join us for one of our most popular events of the year on April 28th at the Millennium Hotel Buffalo! A Night of Hope for Parkinson’s is our Annual wine tasting event. Come sample wine, beer, and delicious food all while supporting NPFWNY.

Tickets are $50 in advance and $60 at the door, but to make this night even more special, we are also offering package deals. $199- will get you a room for the night at the Millennium Hotel and  2 tickets to the event, and $250- will get you a room at the Millennium Hotel, 2 tickets to the event, a $25 gift card to the Galleria Mall and champagne and chocolates. These are deals that you just can’t pass up!

Doors open at 6:30PM for this amazing event and we hope to see everyone there!

Millennium Hotel Buffalo: 2040 Walden Ave, Buffalo NY 14225

Parkinson’s Disease Education Symposium 2017-

On May 13th, we will be hosting the 18th Annual Parkinson’s Educational Symposium at the Millennium Hotel Buffalo. This event is FREE to the public and is a great opportunity for Parkinsonians, Caregivers, loved ones, or someone looking to learn more about Parkinson’s disease, to gain some useful knowledge about the disease. We have a panel of experts that will be presenting this year including, Vanessa Hinson, Kelly Andrzejewski, Cynthia Pegado, Jian Feng, Tom Guttuso, David Lichter, Anupama Kale, and John Baumann.

The day begins at 9AM and goes until 2PM and lunch will be served. We ask that you RSVP at your earliest convince because there are a limited number of seats and they will go quick! Call (716) 449-3795 or email cjamele@npfwny.org to reserve your seat today!

Millennium Hotel Buffalo: 2040 Walden Ave, Buffalo NY 14225

Run for it Marty!-

Looking for a way to get some exercise and also raise money for a great cause? Look no further! Register today for a virtual 5k, 10k, 13.1, or 15 mile run/walk/cycle put on by Run4Buffalo. There is a $23 registration fee or $20 early bird registration fee (3/8-3/12) with a portion of the proceeds going to NPFWNY!

Now this is not your average race. Because it is virtual, you can complete your distance walking, running, or biking between the dates of 3/13/17 and 4/30/17 anywhere and any time! Once registered you will get an email giving you more instructions. Seeing that movement is key in battling Parkinson’s disease, this is a great way to get out and get moving and also raise money for a worth cause! We hope to have as many as possible registered! Click here for more info!

Great Turn out for the Valentine’s Day Dinner Dance-

We had an amazing turn out of 100 people at the Valentine’s Day Dinner Dance this year! The food was great, the dance floor was full, and love was in the air as we spent the night mingling with friends and family. We would like to thank Ilio DiPaolo’s for hosting us again this year, their great restaurant is part of what makes this night so special to many. We would also like to thank the Road Runners for another year of fantastic entertainment! We even had a special guest appearance on the drums, Bob Lewandowski! Bob gave us an incredible performance leaving many of us speechless as he performed with the Road Runners for one song!

Thank you to everyone who came out, despite the weather this year. It’s with your support that we are able to continue to put on events like the Valentine’s Day Dinner Dance. We are already booked for next year also! The Valentine’s Day Dinner Dance will be held on Saturday, February 10th 2018 at Ilio DiPaolo’s Restaurant. Mark your calendars!

Another Fun PD Skating Party!-

Our Annual PD Skating Party was great success! We had another great turn out and made great use of the Ice Bikes. We would like to thank Buffalo Ice Bikes for another year of their services for this event. They make it easy and care-free for a Parkinsonian to get out and skate on the ice! We would also like to thank Canalside for hosting us again this year and for not only providing the ice rink, but also the warming tent, seeing that it was a cold Buffalo night! Thank you to Medtronic and Lunbeck for making this fun night possible and also thank you to our volunteers, Mario and Sam Bucolo- they were a great help!

 

LSVT

Connie Jo Bish-Zeigelhofer, A speaker at the Symposium, talked about the benefits of the LSVT Therapies. The attached flyer has more information about the therapies that will hopefully help many with PD!

LSVT Trained Therapists

 

 Worth A Look!

Blue for You!

Looking for a fun way to get involved this Parkinson’s Awareness Month? We are hosting a great contest this year and it’s super easy to participate! All you have to do is submit a photo to us of you getting involved in one of our events and the best photo wins a prize! You can send submissions to gmameli@npfwny.org until 5/15.

Dr. Giroux, another speaker at the Symposium, had brought coupons for her book and if you didn’t get one there, we have it available here!

Giroux Book Coupon

Click here for your Coupon!

Did you know we have a Facebook page? Check us out and “like” our page to get updates on our chapter, view pictures from recent events, and share comments.

We also have a Twitter! Follow us for updates on events!

Lending Library – Interested in learning more about Parkinson’s disease? Our office has a variety of books and media available free for you to borrow! To borrow materials, please contact our office at (716) 449-3795. Check out the complete list of titles here.

Niagara Falls in blue 2 Niagara Falls bathed in blue for PD Awareness Month Blue Peace Bridge 1 Peace Bridge lit in Blue for PD Awareness Month

Read past educational articles and stories.

PD Ribbon Sales: Support Those Who Support Us

Visit these locations to make donations…

Consumers Beveragesvisit any one of their 17 locations

Consumer's West Seneca 2016-2Consumer's Transit Road-2016 (1)Consumer's West Seneca 2016-1

Santora’s Pizza Pub & Grill– 1402 Millersport Hwy and 7800 Transit Rd

Santora's 1Santora's 2

Hot Mama’s Canteen-12 Military Rd, Buffalo

Flying Bison Brewing Co.-840 Seneca St, Buffalo, NY 14210

Flying Bison 1Flying Bison 2

Mr. Goodbar-1110 Elmwood Ave, Buffalo

Scripts Cafe-12 East Ave, Lockport

MOG Gyms– 1801 Grand Island Blvd, Ste 100, Grand Island and 1491 Sheridan Dr

Frontier High School-4432 Bayview Rd, Hamburg

Frontier Administrative Office– 4432 Bayview Rd, Hamburg

Lyndonville Central Schools– 25 Housel Avenue. Lyndonville

Westfield High School– 203 E Main St, Westfield

Great Lakes Orthodontics– 200 Cooper Ave, Tonawanda

Dry Gulch Dance Hall– 3145 Walden Ave, Depew

Anchor Bar1047 Main St, Buffalo, NY 14209